Prostate Cancer – PSA Passport
On 4th July 2017, the engagement team along with the team responsible for the prostate cancer work stream, ran a focus group with 12 men from across south west London who had experience of prostate cancer. The aim of the focus group was to work with the men to develop and test out a new patient held record that would help men record their PSA (prostate specific antigen) levels which would result and assist in greater self-management.
Attendees were able to share their experiences of going through the prostate cancer pathway, highlighting what worked well and what could have been improved. We then asked everyone what would be a helpful tool for them to enable them to take more control over their care. Attendees from the focus group were offered the opportunity to get involved with the Prostate Cancer Working Group as patient representatives. Two attendees took up the position in August 2017.
The focus group gave the team the detail needed to develop the PSA passport. The first draft of the PSA passport has been circulated to those who attended the focus group for their comments and these have been incorporated into the next iteration . The PSA passport is being used in two boroughs in south west London. It is likely that all boroughs will be using the PSA passport by April 2018.
Outputs from the PSA Focus Group can be found below: